I’m just coming through another one of the times that tries my soul: a Fibromyalgia flare. If you’re not familiar with Fibromyalgia, it’s a chronic pain and fatigue condition allegedly caused by an overactive/oversensitive Central Nervous System. It can be managed to some extent on a daily basis, but the owner of the aforementioned Frailty doesn’t know from day to day whether it will be a good day or a bad day, a normal pain and fatigue day or an F word day (er, of course I meant Frailty there…..)
A few weeks ago I hit the perfect storm for a flare–the decision to have my 14 1/2 year old dog euthanized, the 5th anniversary of my sister’s death, among other things. Even weather changes seem to contribute. A bad day turned into bad weeks. It seemed like sleeping and trying to ease the extreme pain of this unwelcome flare were the only goals I could work toward. I had no extra brain cells to use.
I hate this scenario, one that I revisit on an unexpected basis, though it feels more like it drops in on me like a surprise guest–“Here I am! Hope you don’t mind if I drop in unexpectedly to stay awhile and change every plan you’ve made for what is as yet an undetermined amount of time!”
And how I tend to treat myself during this state of Frailty is brutal too. I tell myself I’m useless. I tell myself it’s my fault, I must not be doing something right or this wouldn’t happen to my brain and body. I get angry. I get sad. I feel sorry for myself, and then I get angry at myself for feeling sorry for myself, and that makes me sad. It’s a real party of one.
This particular flare was so bad that the friend I rent from told me she actually came in to see if I was still breathing. (And here my imagination goes a little TV Fabulous and sees her leaning across my curled body with a tiny makeup mirror to see if I have breath to fog it or is it necessary to call 911, at which point she looks around at the shoes, books, and electronic devices tumbled by my bed that the paramedics would need to navigate and decides it’s better to just close the door and let nature take its course.)
Frailty. It’s a big bad word to me that begins to define my worth and take me to a dark place of Not Good Enough and Worthless and Too Weak. And–dare I say it–UNPRODUCTIVE. (GASP!!)
Once I realize the party is headed for StinkTown, one thing I do is to allow the words of self-flagellation to fly at me but simply glance off. To recognize that while this Frailty may derail me for a time it won’t shut down the railway altogether–I have a temporary Out Of Service sticker on my forehead, but in time it will lose its sticky and the train of my body and brain will begin to run again.
A couple of things I like to do for myself in these times: I’m a fan of visualizing. Whatever makes sense to you will be the best, but for me I actually visualize myself with big pieces of crumpled paper being blown at me like I’m in a storm, and on those papers are the negative words and phrases written in large, dark print. They hit me but then continue on in the wind past me. They don’t stick. I also love to listen to affirmations. My favorite at the moment is from Belleruth Naparstek, “Healing Trauma.” Her CDs usually have an intro, a guided imagery segment, and then an affirmations segment. The affirmations in her voice are deeply soothing to my mean-spirited brain, and help me treat myself more gently.
IMPORTANT: all this takes practice. When you try to change your thinking be gentle with yourself–it won’t change at once.
The BringYourOwnBeverageConversation: What do you see as your frailties? What frailties cause you to belittle yourself? I saw as I wrote this post just how big of a deal being Nonproductive is for me, and how little grace I give myself when I need it.
Hope to hear from you!